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Socio-empirical and ethical analysis of patients' expectations and attitudes toward prognostic tests based on biomarkers in rectal cancer therapy

Subject Area General and Visceral Surgery
Term from 2011 to 2015
Project identifier Deutsche Forschungsgemeinschaft (DFG) - Project number 33996666
 
In this subproject, non-participatory observation of informed consent communication and interviews with patients will be used to identify and analyze the role of information, autonomy, and trust in patients’ experience with expectations of ”personalized” treatment for rectal cancer. In this context, we will investigate patients’ understanding of scientific and medical facts as well as their expressed values with regard to decision-making and informed consent procedures. Furthermore, we will explore sociocultural and gender-related factors that might be associated with patients’ attitudes. Under the theoretical framework of the physician-patient relationship, the ethical analysis will be combined with the empirical findings. The aim of this subproject is to identify uncertainties, conflicts, contradictions, and problems from the perspective of patients and to make them available to ethical and clinical reflection. Finally, a shared decision-making approach will be developed to integrate these new social and ethical discernments into the complex situation of cancer treatment.
DFG Programme Clinical Research Units
 
 

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